Parent of a Child with Albinism

Most parents know how hard it can be to get your child to “perform” on command, but I decided to give it a shot. Here is Lyra showing off some of the words she’s learned over the last couple of months.   She has been receiving regular speech therapy for the last month.  Lyra even mentions her speech therapists name, Scott, in the video…hmmmmm…  I swear it was just a coincidence. 

This was an idea I got from Lyra’s TVI.  I took pictures of a variety of toys and objects that Lyra was familiar with or played with regularly.  To make them more durable, I taped them to poster board a cut them out.  Then I put them into the plastic sleeves of some old photo albums I had, cut them out and then taped the end.  They were those free photo albums they used to give me when I’d have film developed at Wal-mart.   (more…)