Parent of a Child with Albinism

Lyra’s early intervention team recently completed her yearly re-evaluation. Lyra is 2 years and 4 months old.  Her goals are updated at least once every 6 months.  (more…)

I post a lot of videos of Lyra. I do this not just to entertain, but also to support my overall purpose of starting this site. I’m not sure if they really HELP other parents of children with albinism.  I hope that for NEW parents of a child with albinism, watching these videos gives them comfort.  I want encourage them and show them that everything is going to be okay.  By seeing how happy, and NORMAL, and silly, and beautiful Lyra is, maybe they will worry a little less, smile a little more and have hope for their child’s future.

Plus…I’m her Mommy…and I HAVE TO show her off. 

As I may have mentioned before, over the last 2 years, writing has sort of become my therapy.

I recently had my 4th article published in Albinism Insight.  The article is about emergent literacy in children with low vision.  The information can really be applied to ALL children with low vision, not just those with albinism.  Some of the information from my previous post, “Literacy Lollapalooza” is included in the article.  You can view my article by clicking on the following link.

literacy-all-pgs

Recently, our family has been reconnected with the Parents as Teachers program.  We first participated in the program 5 years ago in a different school district, with Dominick.

Parents as Teachers (PAT) is an early childhood parent and family support program serving families throughout pregnancy until their child enters kindergarten, usually age 5.  Here are the goals of the program from the PAT website:

Program Goals
* Increase parent knowledge of early childhood development and improve parenting practices
* Provide early detection of developmental delays and health issues
* Prevent child abuse and neglect
* Increase children’s school readiness and school success

This FREE early childhood program is for ALL children, not just children who have a delay in their development. Parents are supported by PAT-certified parent educators who provide home visits every 6-8 weeks. At each visit, in addition to offering developmental screenings, a parent educator will bring activities to do with your child to help enhance his/her language development, intellectual growth, social development and motor skills. (more…)