Parent of a Child with Albinism

Lyra “wrote” and drew the pictures for her story.  She is very descriptive with her storytelling.

This takes so much less effort than actually WRITING a post.

I hope to start writing again soon though. 

Lyra is “reading” her storybook, Quiet Loud by Leslie Patricelli.   Here are the words from the story, in case you can’t understand what she is saying.

Whispering is quiet.  Screaming is LOUD.
Crayons are quiet.  Pots and pans are LOUD.
Fishies are quiet.  Doggies are LOUD.
Thinking is quiet.  Singing is LOUD.
Snow is quiet.  Rainstorms are LOUD. (She skipped this page)
Slippers are quiet.  Mommy’s shoes are LOUD.
Sniffles are quiet.  Sneezes are LOUD.
Turtles are quiet.  Monkeys are LOUD
Birds are quiet.  Airplanes are LOUD.
Libraries are quiet.  Playgrounds are LOUD.
Naptime is quiet.  Playtime is LOUD.
More quiet things:  pillow, bunny, plant, ant, cloud, snail, teddy bear
More LOUD things: drum, horn, rooster, fire truck, teakettle, alarm clock, burp(Lyra called this, “baby doll”)

I told Lyra that I wanted to take some pictures of her wearing her new glasses. She wanted me to make a video of her instead.

Who am I to argue with Little Miss Opinionated.

Last month at her big brother’s birthday party, Lyra got to go roller skating.  She did surprisingly well for her first attempt at skating.  I expected her to be scared or at least more hesitant because of all the other skaters zooming by.  She had a blast!

This is a video of Lyra with her TVI doing a color sorting/matching activity.  They are using colored bears and boats.  I recently did some Christmas shopping for Lyra and found a similar toy/game.  It also includes cards used for learning to recognize and make patterns.  For more information you can click on the product link below.
Color Clown Sort and Pattern Kit

Over the last couple of days, Lyra has had this AWESOME new game/activity to play with.  Her TVI brought it with her to her last visit and now we are “trying it out” to see if it is something we would want to buy. See the video above to watch Lyra in action.

This game, toy, activity, or whatever you want to call it is called Toddler Make-a-Match.  There are a variety of learning activities you can do with it, each having a different level of difficulty.  All of the items needed for the activities are provided, including 12 pairs of objects, 12 silhouette cards, 12 outline cards, 3 blue baskets, and the instructions/activity suggestions. (more…)

Normally Lyra’s TVI and OT come separately.  Lately they have been coming for visits together to try and work with Lyra outside where she is less familiar with the environment.  However, the last two Tuesday’s when they have come, it has been raining outside.

So, here is a video of their latest visit.