admin | September 22, 2008
Recently, our family has been reconnected with the Parents as Teachers program. We first participated in the program 5 years ago in a different school district, with Dominick. Parents as Teachers (PAT) is an early childhood parent and family support program serving families throughout pregnancy until their child enters kindergarten, usually age 5. Here are [...]
Category: Early Intervention, Support and Awareness |
2 Comments »
Tags: albinism, early childhood
admin | August 20, 2008
This past spring, our family attended an event at our local Children’s Center for the Visually Impaired called Literacy Lollapalooza. This all day workshop type event included a variety of sessions designed to promote literacy in children with visual impairments. One of the activities that was talked about in a couple of the sessions was [...]
Category: Early Intervention, Videos |
4 Comments »
Tags: albinism, emergent literacy
admin | August 12, 2008
We recently updated Lyra’s speech and language goals on her IFSP. Her speech therapist has been coming weekly for the last 12 weeks. She’s doing great and we’re considering changing her sessions to biweekly instead of weekly. She went above and beyond meeting her first set of goals, so I think we can set our [...]
Category: Early Intervention |
1 Comment »
Tags: albinism, language development, parenting
admin | May 18, 2008
Because of privacy issues, I have removed some of the document links in the Early Intervention section. If you would like to take a look at any of these files, please send me an email and I may be able to send them to you via email. Let me know if you have any questions. [...]
Category: Early Intervention |
No Comments »
Tags: albinism
admin | April 19, 2008
Lyra has been been working on activities using a light box during her last few sessions with her TVI. Specifically she has been working on shapes and color sorting. Using the light box really motivates her to sustain her attention to an activity for a longer period of time. It makes the learning activity more [...]
Category: Early Intervention |
No Comments »
Tags: albinism, Early Intervention, low vision
admin | March 10, 2008
This is an older video, but it’s a good one to have on here for everyone to see. This is of one of Lyra’s first few sessions, either 3rd or 4th, with her Teacher of the Visually Impaired (TVI) and Occupational Therapist (OT). She is 5 and a half months old. Her TVI and OT [...]
Category: Early Intervention, Videos |
No Comments »
Tags: albinism, children with albinism, Early Intervention, low vision
admin | February 19, 2008
‘Ehhhwhoa’ and ‘Buh-bah’= Hello and Goodbye Lyra’s speech development is still delayed, and she has yet to begin receiving actual services from a speech therapist. This will begin next week. She was evaluated in October, but the evaluation was incomplete. In addition to that, staffing issues caused a delay in beginning services, so we had [...]
Category: Early Intervention |
1 Comment »
Tags: albinism, children with albinism, Early Intervention
admin | January 31, 2008
Lyra wears her glasses now all the time, rarely taking them off except for at night. This is wonderful, however now they are nearly too small for her. They are beginning to leave marks on her nose where they are too tight, and they barely reach over her ears. This STINKS! I can’t believe we [...]
Category: Early Intervention, Videos, Vision Progress |
2 Comments »
Tags: albinism, fine motor, O&M, Orientation and Mobility, vision
admin | November 24, 2007
Lyra had her first Orientation and Mobility assessment on October 16th. She was 17 months old. I had been and still am doing a lot of research on Orientation and Mobility, and the benefits of the services to infants, toddlers, and preschoolers. Orientation and mobility(O&M) is 3 things: knowing where you are, knowing where [...]
Category: Early Intervention |
1 Comment »
Tags: albinism, children, Early Intervention, Orientation and Mobility
admin | October 18, 2007
Lyra has been receiving Early Intervention(EI) services since she was about 5 months old. The level of services and method of services vary from child to child and state to state. These services are provided under the federal law IDEA (Individuals with Disabilities Education ACT). I have come across parents that have never heard of [...]
Category: Early Intervention |
No Comments »
Tags: albinism, Early Intervention