Siblings of a Child with Albinism

| February 15, 2008

Lately I’ve been thinking about why I created the category on this site called Dominick and Rebekah. At the same time, I’ve been thinking about or feeling like lately I’ve been spending an enormous amount of my time focused on Lyra’s needs and neglecting the needs of Dominick and Rebekah. Have they noticed? I’m sure [...]

A Tisket, a Tasket, a Baby in a Basket

| February 10, 2008

These are the kinds of things that Daddies teach their babies… You can never have too many videos of Lyra. : ) This is her showing off her new trick; and then later, just plain showing off. Here are the lyrics to the song she is attempting to sing. It is our special version of [...]

Hair Color Changes

| February 2, 2008

Lyra’s hair has started looking rather dingy. I can think of no other word to describe it. YES, I do wash my child’s hair. I just don’t think the baby shampoo is going to cut it anymore. Her hair just has this slight yellowish/grayish tint to it lately. I know it’s not her hair gaining [...]

Albinism Awareness

| January 31, 2008

Although I haven’t been that vocal about it on this site, albinism awareness is something that is extremely important to me. One topic in particular that I have very strong opinions about is how albinism is portrayed on TV shows and in movies. I will educate everyone I know or ever meet in the hopes [...]

More Dumb Things People Say

| October 12, 2007

I was at my dentist’s office making a payment with Lyra a while back, and there was an older woman finishing up about the same time as us. She had been staring and making baby talk/saying Hi to Lyra for a few minutes. As we were walking out, me pushing Lyra in her stroller, the [...]

Laugh It Off

| August 7, 2007

Sometimes the only way for me to deal with things or to get through a situation is to add a little humor. And thats OK… You need too be able to laugh it off once in a while. It’s kind of therapeutic for me and sometimes keeps me from bursting into tears. For example, when [...]

Welcome to Holland

| July 31, 2007

    I found this beautiful story from a link on another parent’s website. Thank you Cassandra. It’s another way of looking at or describing what it’s like for parents who have a child who is different in some way. To me, it is also a reminder that you never know what God has planned [...]

Lyra… “Cover Girl”

| July 10, 2007

My baby girl is on the cover of a magazine!!! I wrote an article for the latest issue of Albinism Insight, a quarterly magazine published by NOAH. I had included some pictures to go with the article, but her picture being on the cover was a complete surprise. We were all very excited when we [...]

Rebekah

| April 12, 2007

My daughter Rebekah is 11 years old. I have a unique and special relationship with her that different than my relationship with Dominick and Lyra. Part of this is because I was very young when I had her and in many ways we grew up together. Consequently, I am quite protective of her and cautious [...]

Dominick

| March 2, 2007

Dominick is 5 years old. Dominick is my sweet baby boy, definitely a mama’s boy. He is laid back and untroubled, witty and random. Until recently he hasn’t really asked questions related to Lyra’s albinism. When she was born, we talked to him about it, but not in great detail. He was 4, so he [...]

+(reset)-