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	<title>Parent of a Child with Albinism</title>
	<link>http://www.parentofachildwithalbinism.com</link>
	<description></description>
	<lastBuildDate>Tue, 30 Sep 2008 18:34:03 +0000</lastBuildDate>
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		<title>IFSP Goals Updated</title>
		<description><![CDATA[Lyra&#8217;s early intervention team recently completed her yearly re-evaluation. Lyra is 2 years and 4 months old.Â  Her goals are updated at least once every 6 months.Â  Here are her current goals for vision, cognitive skills, gross motor, and fine motor.Â  Her speech and language goals can be seen in a previous post, HERE.
GOALS FOR [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/early-intervention/ifsp-goals-updated/</link>
			</item>
	<item>
		<title>Lyra the Songster</title>
		<description><![CDATA[I post a lot of videos of Lyra.  I do this not just to entertain, but also to support my overall purpose of starting this site. I&#8217;m not sure if they really HELP other parents of children with albinism.Â  I hope that for NEW parents of a child with albinism, watching these videos gives [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/videos/lyra-the-songster/</link>
			</item>
	<item>
		<title>Emergent Literacy</title>
		<description><![CDATA[As I may have mentioned before, over the last 2 years, writing has sort of become my therapy.
I recently had my 4th article published in Albinism Insight.Â  The article is about emergent literacy in children with low vision.Â  The information can really be applied to ALL children with low vision, not just those with albinism.Â  [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/early-intervention/emergent-literacy/</link>
			</item>
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		<title>Parents as Teachers</title>
		<description><![CDATA[
Recently, our family has been reconnected with the Parents as Teachers program.Â  We first participated in the program 5 years ago in a different school district, with Dominick.
Parents as Teachers (PAT) is an early childhood parent and family support program serving families throughout pregnancy until their child enters kindergarten, usually age 5.Â  Here are the [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/early-intervention/parents-as-teachers/</link>
			</item>
	<item>
		<title>Transition- Site Changes</title>
		<description><![CDATA[My husband is currently in the process of transferring this site from one hosting provider to another.   During that process, the site may occasionally be down completely or you may find links not working, pictures missing, and other wacky looking things. Hopefully everything will be looking and functioning properly within a few days.
Thanks.  
&#169;2008 [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/new-posts/transition-site-changes/</link>
			</item>
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		<title>New Pictures</title>
		<description><![CDATA[Over the last couple of weeks I&#8217;ve been borrowing a friend&#8217;s Sony Digital SLR camera.Â  It&#8217;s AMAZING how easy it is to take good pictures when you have a good camera.Â  It&#8217;s been so much fun!Â  I&#8217;ve been taking pictures like crazy.Â Â  Lyra really knows how to ham it up for the camera.  




&#169;2008 [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/photos/new-pictures/</link>
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		<title>Vision Update - 2 years 3 months</title>
		<description><![CDATA[Lyra had an appointment with her pediatric ophthalmologist this month, a check-up that was originally scheduled for the end of September. Several weeks ago, we lost one of the lenses from Lyra&#8217;s glasses. After over a week of searching, I gave up. We knew we had to get her a new pair. I didn&#8217;t want [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/new-posts/vision-update-2-years-3-months/</link>
			</item>
	<item>
		<title>Literacy Lollapalooza</title>
		<description><![CDATA[
This past spring, our family attended an event at our local Children&#8217;s Center for the Visually Impaired called Literacy Lollapalooza.Â  This all day workshop type event included a variety of sessions designed to promote literacy in children with visual impairments.Â  One of the activities that was talked about in a couple of the sessions was [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/early-intervention/literacy-lollapalooza/</link>
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		<title>Resources</title>
		<description><![CDATA[Albinism Information

NOAH (The National Organization for Albinism and Hypopigmentation)- An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences.
International Albinism Center
Albinism International- An online support community for people with albinism, parents of children with albinism, and people related persons with albinism.
Albinism Fellowship [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/resources/resources-2/</link>
			</item>
	<item>
		<title>New Parenting Book Available</title>
		<description><![CDATA[
The new book, &#8220;Raising a Child with Albinism: A Guide to the Early Years&#8221; is now available for purchase.Â  It is published by the National Organization for Albinism and Hypopigmentation (NOAH) and is the first of its kind.Â  This book will be an invaluable resource for new parents of a child with albinism.Â  It truly [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/resources/new-parenting-book-available/</link>
			</item>
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		<title>Photos by Rick Guidotti</title>
		<description><![CDATA[Here are a few of the pictures of Lyra and Dominick taken by Rick Guidotti at the NOAH conference last month.
&#169;2008 Parent of a Child with Albinism. All Rights Reserved..]]></description>
		<link>http://www.parentofachildwithalbinism.com/photos/photos-by-rick-guidotti/</link>
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		<title>Speech and Language Update</title>
		<description><![CDATA[
We recently updated Lyra&#8217;s speech and language goals on her IFSP.Â  Her speech therapist has been coming weekly for the last 12 weeks.Â  She&#8217;s doing great and we&#8217;re considering changing her sessions to biweekly instead of weekly. She went above and beyond meeting her first set of goals, so I think we can set our [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/early-intervention/speech-and-language-update/</link>
			</item>
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		<title>How Lyra Sees- Link Updated</title>
		<description><![CDATA[I have updated the link in the sidebar, &#8220;How Lyra Sees&#8221; with the new longer version of the presentation.
Dr. Brian Evan&#8217;s updated presentation includes more than double the number of slides as the previous one.Â  This has always been very helpful to share with friends and family members to explain to them how albinism affects [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/new-posts/how-lyra-sees-link-updated/</link>
			</item>
	<item>
		<title>2008 Toy Guide</title>
		<description><![CDATA[The Toy Industry Foundation, in partnership with Alliance for Technology Access (ATA) and American Foundation for the Blind (AFB) have released an updated toy guide for children with special needs.Â Â  Here is the link:
Let&#8217;s Play: A Guide to Toys for Children with Special Needs
&#169;2008 Parent of a Child with Albinism. All Rights Reserved..]]></description>
		<link>http://www.parentofachildwithalbinism.com/toys-toys-toys/2008-toy-guide/</link>
			</item>
	<item>
		<title>2008 NOAH Conference</title>
		<description><![CDATA[
A couple of weeks ago, our family attended the 2008 NOAH National Conference in Las Vegas.Â  I was getting ready to write this post and I was having trouble remembering everything I learned at the conference.Â  We had a great time and I learned a lot and met a lot of people, but honestly, it&#8217;s [...]]]></description>
		<link>http://www.parentofachildwithalbinism.com/new-posts/2008-noah-conference/</link>
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