admin | September 12, 2012
When Lyra was born, her diagnosis of albinism was a shock to all of us. The weeks and months following were a time of confusion and worry about what it all meant. Neither my husband nor I had ever seen someone with albinism in person. One thing that we really wanted to be able to [...]
Category: New Posts, Support and Awareness |
1 Comment »
Tags: albinism, Hermansky-Pudlak Syndrome
admin | September 8, 2012
Last year I discovered that at Lyra’s elementary school, they utilize A LOT of parent volunteers in regular classrooms and throughout the school building. Knowing that most of these volunteers would know little or nothing about albinism, I decided to create a document with some of the need to know information about Lyra. I thought [...]
Category: Education, New Posts |
2 Comments »
Tags: albinism, albino
admin | August 25, 2012
We are still working on finishing up Lyra’s IEP for this year. Hopefully we will have the final version completed by the end of next week. The following is what I wrote to be included in the “Parent Concerns” and “Plans for the Future” sections of her IEP. ________________________________________________ Lyra is a sweet, caring, and [...]
Category: Education, New Posts |
1 Comment »
Tags: albinism, dual-media, low vision, Orientation and Mobility
admin | July 25, 2012
These are some great resources that learned about through the college courses I have recently been taking. Even though not all of the sites are specifically related to visual impairments, all of them are full of useful information that I think may be helpful…or at least interesting enough to check out. All About Vision -How [...]
Category: New Posts, Resources |
1 Comment »
Tags: albinism, special education, visual impairment
admin | July 22, 2012
I want to preface this post with a little bit of information about me and why I haven’t been writing as much lately. A little over a year ago I started graduate school, pursuing a Masters of Science in Special Education degree and certification as a Teacher of the Visually Impaired. Although very time [...]
Category: New Posts, Vision Progress |
2 Comments »
Tags: albinism, low vision, visual impairment
admin | June 16, 2012
A LOT has happened and there is a lot I need to write about, but for now…this will have to do. Make a video – it’s fun, easy and free! www.onetruemedia.com
Category: New Posts, Videos |
2 Comments »
Tags: albinism, albino, video
admin | January 31, 2012
This past fall, Lyra completed her second soccer season. While she enjoyed the excitement and her success in moments like in the pictures above, overall, it was not a great soccer season. It was more discouraging and depressing. And unfortunately, there were many more moments like in this next picture, than the ones above. :( [...]
Category: Everything Else, New Posts |
2 Comments »
Tags: adapted sports, albinism