Rock Climbing With AlphaPointe

| June 12, 2016

A while back I went rock climbing with Alphapointe at RoKC. It was really fun. I was able to hang out with my friends from KSSB which I hadn’t seen since February. I was scared as I got towards the very top of the walls, probably because of my depth perception… It made it seem […]

O&M Training

| April 11, 2016

I have been having O&M (orientation and mobility) training for a few months now. It has been going really well. I always need to remember to not look down, to keep the cane in front of my belly button, and to always hit the wall or other objects to the side of me when sweeping. […]

Soccer 2016

| March 24, 2016

I’ve recently started playing this year’s spring soccer season. I’ve been playing since I was 6 years old. Here are the pros and cons of playing soccer related to my vision: Sometimes I misjudge the distance of the goal and miss it because of my depth perception. I always need the ball to be a […]

I’m Taking Over For A While

| March 16, 2016

It’s me, Lyra. The star of this site! My mom can’t keep up, so I’m taking over for a while. My birthday is coming up and I’ll be double digits! I don’t really know what to post except that I’ve been making iMovies on my dad’s iPad Mini. There will probably be videos of them […]

International Albinism Awareness Day

| June 13, 2015

Today is International Albinism Awareness Day! Last Year¬†the United Nations General Assembly adopted a resolution establishing June 13th as International Albinism Awareness Day. This date was chosen since it was on that day in 2013 that the UN adopted its first ever resolution on albinism. On May 5, 2015, the UN dedicated a website to […]

Lyra is 9-yrs old!

| May 21, 2015

Does anyone even read this anymore? ūüėõ Today I decided I am going to start writing again! It’s been way too long! And I miss it… For starters, Lyra just turned 9 this month. And today was her last day of 3rd grade! ¬†I don’t even know where to begin with everything else that’s been […]

Dare to be Rare

| September 12, 2012

When Lyra was born, her diagnosis of albinism was a shock to all of us. The weeks and months following were a time of confusion and worry about what it all meant. ¬†Neither my husband nor I had ever seen someone with albinism in person. ¬†One thing that we really wanted to be able to […]

Substitutes and Volunteers

| September 8, 2012

Last year I discovered that at Lyra’s elementary school, they utilize A LOT of parent volunteers in regular classrooms and throughout the school building. ¬†Knowing that most of these volunteers would know little or nothing about albinism, I decided to create a document with some of the need to know information about Lyra. ¬†I thought […]