admin | August 15, 2011
Most everyone knows how I feel about the word “albino”. It’s no secret that I avoid it like the plague. And I’ve never been one to keep my opinions to myself, see Here and Here. The word albino evokes so many different and very strong emotions in me that I don’t think I will ever be completely okay [...]
admin | January 3, 2011
Below is the long version of an article I wrote that was published in the latest issue of Albinism Insight. This is not a comprehensive list. I’m not a teacher, although i do have a teaching degree. The advice I give is based on my experience as a parent, having 2 children(ages 4 and 14) [...]
admin | April 23, 2010
With everything I am about to say, it is my intention to represent only the opinions of me and my family. While I do refer to other parents, my statements do not reflect the views of all parents of children with albinism or individuals with albinism. People who know me and my family through NOAH [...]
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admin | February 3, 2010
Be a Part of the 2010 NOAH KC Bowl-a-thon! Join Team Kansas Saturday, February 20, 2010 from 1:00 – 3:00 pm College Lanes 10201 College Blvd (69 & College) Overland Park, KS 913-451-4799 $5.00 per game and $4.00 for shoes or packages available: 1) $47.99 6 people on a lane, two hours of unlimited bowling, [...]
admin | October 6, 2009
This week, ABC’s 20/20 did an hour long special about albinism and the crisis in Tanzania, Albinism: Caught Between Dark and Light. NOAH had been in contact and working with ABC News A LOT over the past year, providing them information and connecting them with families and individual with albinism. Overall I think the special [...]
admin | July 14, 2009
I don’t believe I’ve ever mentioned this on this site, but I am now a member of the NOAH Board of Directors. As a board member, one of the projects I’ve been working on is planning a local 1-day mini-conference to be held on on August 8th at the Kansas State School for the Blind. [...]
admin | October 12, 2008
In Tanzania, a country in east Africa, more than 28 people with albinism, including a 7-month old baby, have been murdered. Their body parts are being sold to witchdoctors to be made into potions. It is a widespread belief that these potions bring riches and have magical powers.
admin | September 22, 2008
Recently, our family has been reconnected with the Parents as Teachers program. We first participated in the program 5 years ago in a different school district, with Dominick. Parents as Teachers (PAT) is an early childhood parent and family support program serving families throughout pregnancy until their child enters kindergarten, usually age 5. Here are [...]
admin | July 23, 2008
A couple of weeks ago, our family attended the 2008 NOAH National Conference in Las Vegas. I was getting ready to write this post and I was having trouble remembering everything I learned at the conference. We had a great time and I learned a lot and met a lot of people, but honestly, it’s [...]
admin | July 16, 2008
Nothing can compare to seeing and talking to adults with albinism and other parents of children with albinism.
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