Posted By admin on July 16, 2008
Nothing can compare to seeing and talking to adults with albinism and other parents of children with albinism.
Last month, a couple of friends and I organized a local picnic for adults with albinism and other parents of children with albinism. It was our first attempt at doing anything like this. We called it the Greater Kansas City NOAH Picnic in the Park. I was REALLY nervous about Lyra in the sun all day. This was really her first time ever spending several hours playing outside mid-day in the full sun. I was seriously reapplying sunscreen about every 10 minutes. I just didn’t want to miss a spot. 😛
At the end of the day, Lyra had remained sunburn free. Yay!!! Her cheeks were a little red, but that was caused by all the rubbing I did applying sunscreen. ooops…
Even with my last minute planning, we ended up having 3 adults with albinism and 4 children with albinism plus their families attend. I thought that was AWESOME for our first year. We have already set the date for next year’s picnic… June 6th, 2009.