Category: albinism

Dare to be Rare

| September 12, 2012

When Lyra was born, her diagnosis of albinism was a shock to all of us. The weeks and months following were a time of confusion and worry about what it all meant.  Neither my husband nor I had ever seen someone with albinism in person.  One thing that we really wanted to be able to […]

Substitutes and Volunteers

| September 8, 2012

Last year I discovered that at Lyra’s elementary school, they utilize A LOT of parent volunteers in regular classrooms and throughout the school building.  Knowing that most of these volunteers would know little or nothing about albinism, I decided to create a document with some of the need to know information about Lyra.  I thought […]

1st Grade IEP- Parent Concerns

| August 25, 2012

We are still working on finishing up Lyra’s IEP for this year.  Hopefully we will have the final version completed by the end of next week.  The following is what I wrote to be included in the “Parent Concerns” and “Plans for the Future” sections of her IEP. ________________________________________________ Lyra is a sweet, caring, and […]

New Resources

| July 25, 2012

These are some great resources that learned about through the college courses I have recently been taking.  Even though not all of the sites are specifically related to visual impairments, all of them are full of useful information that I think may be helpful…or at least interesting enough to check out. All About Vision –How […]

Vision Update – 6 years old

| July 22, 2012

I want to preface this post with a little bit of information about me and why I haven’t been writing as much lately.   A little over a year ago I started graduate school, pursuing a Masters of Science in Special Education degree and certification as a Teacher of the Visually Impaired.  Although very time […]

Reading for Real!

| June 16, 2012

A LOT has happened and there is a lot I need to write about, but for now…this will have to do.  

Second Soccer Season

| January 31, 2012

This past fall, Lyra completed her second soccer season.  While she enjoyed the excitement and her success in moments like in the pictures above,  overall, it was not a great soccer season.  It was more discouraging and depressing.  And unfortunately, there were many more moments like in this next picture, than the ones above.   […]

Lyra Graduates from Preschool

| May 19, 2011

I am still in denial that she is actually going to be starting kindergarten this fall.  She’s too LITTLE for kindergarten! I tell her I don’t want her to grow up, but then she tells me, “it’s okay mommy, I’ll still be your baby.”

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