Category: albinism

Occupational Therapy Goals

| March 1, 2007

Today at Lyra’s OT session, we began updating her IFSP goals/outcomes for the next 6 months. These are what we want Lyra to be doing somewhere between now and when she is 16 months old. We really just got started with updating these today. We may add some goals in these areas and we still […]

Hair, Hair, and More Hair!

| February 18, 2007

Lyra’s hair is getting sooooo long! She has a TON of hair. She’s got a second set of bangs growing under her bangs. That new hair is almost to her eyebrows. The thought of cutting it makes me sad. She’s my last baby and I’m in no hurry for her to grow up. I’m not […]

Seeing the spoon.

| February 10, 2007

How does a baby know to open her mouth for a spoonful of food? They see the spoon coming. In Lyra’s case, at 4 months, she couldn’t see the spoon coming. This made feeding her more difficult. We tried different sound cues to get her to open up. One that was more successful was tapping […]

What Can Lyra See?

| February 8, 2007

What Can Lyra See? A lot…but just not as clearly as everyone else. Her vision now is about 20/200, which is legally blind, but this doesn’t mean she lives in a world of darkness. My vision without my glasses or contacts is 20/200. Very early on, we knew she could see something…we just weren’t sure […]

Early Intervention

| February 5, 2007

Early Intervention Services-4 months-present Vision Specialist and Occupational Therapist come once a week for an hour, one on Tuesday, the other on Thursday. Work on vision skills- tracking, following, depth perception Work on motor skills, reaching, grasping, holding head up, rolling over Work on using vision and motor skills together- opening mouth when spoon is […]

Visits to Pediatric Ophthamologist

| February 5, 2007

Visits to the Pediatric Ophthalmologist-Dr. Trudi Grin- 1 month old- low pigment in eyes, nystagmus, strabismus, and photophobia. I’m told her vision will likely be anywhere from 20/60 to 20/2200 corrected. 3 months old- doctor still seeing the nystagmus and strabismus in both eyes, now seeing a little bit of farsightedness, but not enough for […]

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