Category: albinism

New Song

| May 6, 2011

Nothing better to post right now.  School/IEP updates coming soon! 😀

3rd Quarter Preschool Progress

| March 31, 2010

The information below is from Lyra’s 3rd quarter progress reports from the private preschool she attends. The first section is from her braille instructor and the other is from her regular classroom teacher.  I am quite pleased with their reports.  😀 Lyra uses a braillewriter adapted with unifix cubes on the keys. She inserts paper […]

Can’t I Just Get a CHART?

| December 10, 2009

Her bus arrives home after school one day – Lyra walks in the front door and drops her backpack on the floor.  As she’s taking her coat off, I ask her, “How was your day?”  “Good” she says…and just before I’m able to ask my next question, she adds, “and I didn’t learn anything new […]

Lyra’s Lazy Mommy

| November 7, 2009

This takes so much less effort than actually WRITING a post. I hope to start writing again soon though.  Make photo slide shows at

20/20 Special on Albinism

| October 6, 2009

This week, ABC’s 20/20 did an hour long special about albinism and the crisis in Tanzania, Albinism: Caught Between Dark and Light. NOAH had been in contact and working with ABC News A LOT over the past year, providing them information and connecting them with families and individual with albinism.  Overall I think the special […]

Sight Unseen

| August 22, 2009

Beginning this year, her first year of preschool, Lyra will be learning both print and braille. This concept is known as “dual-media.” I must admit, when Lyra was a baby, and we were still coming to terms with her condition, the LAST thing I wanted to hear was someone telling me that Lyra might need […]

Kansas City NOAH Mini-Conference

| July 14, 2009

I don’t believe I’ve ever mentioned this on this site, but I am now a member of the NOAH Board of Directors.  As a board member, one of the projects I’ve been working on is planning a local 1-day mini-conference to be held on on August 8th at the Kansas State School for the Blind. […]

20 Questions: 1st IEP-2nd Meeting

| May 15, 2009

Troy and I, and the rest of Lyra’s IEP team met for a 2nd time to continue where we had left off during the meeting the week before.  Like the first meeting, this one also lasted 3 hours, but it was a much more productive 3 hours.  We were able to get the IEP completed, […]