Category: albinism

Fun and Learning

| October 30, 2008

Over the last couple of days, Lyra has had this AWESOME new game/activity to play with.  Her TVI brought it with her to her last visit and now we are “trying it out” to see if it is something we would want to buy. See the video above to watch Lyra in action. This game, […]

Sunscreen Safety

| October 24, 2008

It’s that time of year. We are seeing fewer nice warm sunny days, which means our children are often spending less time outside.  Because of the cooler weather, our kids will be wearing pants and longer sleeved shirts.  However, even in the winter, when they do go outside, we need to remember to apply sunscreen […]


| October 19, 2008

“Of all the joys my life brings, a child’s smile makes my heart sing.” Author: unknown

Session with TVI and OT

| October 15, 2008

Normally Lyra’s TVI and OT come separately.  Lately they have been coming for visits together to try and work with Lyra outside where she is less familiar with the environment.  However, the last two Tuesday’s when they have come, it has been raining outside. So, here is a video of their latest visit. 

Tanzania: Ignorance is Deadly

| October 12, 2008

In Tanzania, a country in east Africa, more than 28 people with albinism, including a 7-month old baby, have been murdered.  Their body parts are being sold to witchdoctors to be made into potions.  It is a widespread belief that these potions bring riches and have magical powers.

IFSP Goals Updated

| September 28, 2008

Lyra’s early intervention team recently completed her yearly re-evaluation. Lyra is 2 years and 4 months old.  Her goals are updated at least once every 6 months. 

Lyra the Songster

| September 26, 2008

I post a lot of videos of Lyra. 😀 I do this not just to entertain, but also to support my overall purpose of starting this site. I’m not sure if they really HELP other parents of children with albinism.  I hope that for NEW parents of a child with albinism, watching these videos gives […]

Parents as Teachers

| September 22, 2008

Recently, our family has been reconnected with the Parents as Teachers program.  We first participated in the program 5 years ago in a different school district, with Dominick. Parents as Teachers (PAT) is an early childhood parent and family support program serving families throughout pregnancy until their child enters kindergarten, usually age 5.  Here are […]