Category: albinism

New Pictures

| August 31, 2008

Over the last couple of weeks I’ve been borrowing a friend’s Sony Digital SLR camera.  It’s AMAZING how easy it is to take good pictures when you have a good camera.  It’s been so much fun!  I’ve been taking pictures like crazy.   Lyra really knows how to ham it up for the camera. 😛

Vision Update – 2 years 3 months

| August 31, 2008

Lyra had an appointment with her pediatric ophthalmologist this month, a check-up that was originally scheduled for the end of September. Several weeks ago, we lost one of the lenses from Lyra’s glasses. After over a week of searching, I gave up. We knew we had to get her a new pair. I didn’t want […]

Literacy Lollapalooza

| August 20, 2008

This past spring, our family attended an event at our local Children’s Center for the Visually Impaired called Literacy Lollapalooza.  This all day workshop type event included a variety of sessions designed to promote literacy in children with visual impairments.  One of the activities that was talked about in a couple of the sessions was […]

New Parenting Book Available

| August 14, 2008

The new book, “Raising a Child with Albinism: A Guide to the Early Years” is now available for purchase.  It is published by the National Organization for Albinism and Hypopigmentation (NOAH) and is the first of its kind.  This book will be an invaluable resource for new parents of a child with albinism.  It truly […]

Photos by Rick Guidotti

| August 13, 2008

Here are a few of the pictures of Lyra and Dominick taken by Rick Guidotti at the NOAH conference last month.

Speech and Language Update

| August 12, 2008

We recently updated Lyra’s speech and language goals on her IFSP.  Her speech therapist has been coming weekly for the last 12 weeks.  She’s doing great and we’re considering changing her sessions to biweekly instead of weekly. She went above and beyond meeting her first set of goals, so I think we can set our […]

2008 Toy Guide

| July 25, 2008

The Toy Industry Foundation, in partnership with Alliance for Technology Access (ATA) and American Foundation for the Blind (AFB) have released an updated toy guide for children with special needs.   Here is the link: Let’s Play: A Guide to Toys for Children with Special Needs

Lyra’s Hoedown!

| July 19, 2008

This is HILARIOUS!   It is Lyra dancing, singing, and playing a pitch pipe!   She is such a ham!  😛