Category: albinism

Light box

| April 19, 2008

Lyra has been been working on activities using a light box during her last few sessions with her TVI. Specifically she has been working on shapes and color sorting. Using the light box really motivates her to sustain her attention to an activity for a longer period of time. It makes the learning activity more […]

Whole Lot of Shakin’ Goin’ On

| April 11, 2008

Okay so I found some time to make this video. This is my attempt at zooming in on Lyra’s eyes so that you can see the degree/severity of her nystagmus. I apologize for my crappy camcorder skills. Between me not holding the camera steady and Lyra’s wiggling, it’s hard to know what shaking is actually […]

Vision Update- 22 months

| April 11, 2008

I have been meaning to post this for several weeks. Lyra visited her pediatric ophthalmologist for a check-up last month. They dialated her eyes this time to see if her refractive error had changed, and it did. Her prescription changed from +2.50 to +3.25 in her left eye and from +2.75 to +3.75 in her […]

New Sun-Protective Clothing

| March 30, 2008

I was browsing through the catalog I received yesterday and found that One Step Ahead has some new sun-protection items. I am definitely going to get the outfit in the first picture below. We bought last year’s version, which was actually a one piece, but still similar. I’m pretty sure it is made out of […]

Bubbles Bubbles…Pop!

| March 28, 2008

Lyra has been exceeding all of my expectations with her vision. She has seen things or done things I thought would never happen. Like all kids with albinism, Lyra has multiple eye problems that contribute to her overall low vision. One of those is nystagmus which is an involuntary rhythmic shaking of the eyes. Lyra’s […]

Early Session with TVI and OT

| March 10, 2008

This is an older video, but it’s a good one to have on here for everyone to see. This is of one of Lyra’s first few sessions, either 3rd or 4th, with her Teacher of the Visually Impaired (TVI) and Occupational Therapist (OT). She is 5 and a half months old. Her TVI and OT […]

Shop-Toys, Books, & Sun Protection

| March 1, 2008

After working on this little project for over a month now, I am finally ready to present this to all of you: Because of the unique needs of children with albinism, it can a very challenging task finding helpful products. I thought it would be nice if parents could find toys and books that are […]

Albinism and Photography

| February 28, 2008

One of the first things any new parent of a child with albinism learns, is that taking good photos of his/her child can be an unbelievable challenge. Why? Because of the red-eye effect caused by the camera flash. I was able to find a really great explanation for what causes that red-eye effect on the […]

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