Category: albinism

Vision Update- 18 months

| December 16, 2007

Lyra had another appointment with her pediatric ophthalmologist a few weeks ago. Her vision continues to improve, however the best estimate we can get as far as accuity is still 20/200. She is too young to obtain visual acuities with standard measures. Dr. Grin is not seeing any recurrence of the strabismus and her nystagmus […]

Orientation and Mobility Assessment

| November 24, 2007

  Lyra had her first Orientation and Mobility assessment on October 16th. She was 17 months old. I had been and still am doing a lot of research on Orientation and Mobility, and the benefits of the services to infants, toddlers, and preschoolers. Orientation and mobility(O&M) is 3 things: knowing where you are, knowing where […]

Lyra’s First Haircut

| October 29, 2007

Lyra got her first haircut on Saturday. She did GREAT! I think it was harder on me. She’s had a mop on her head for quite some time, but I just loved it so much I wouldn’t take her for a haircut. It couldn’t wait any longer, so a friend of mine cut her hair […]

Find Early Intervention Services

| October 18, 2007

Lyra has been receiving Early Intervention(EI) services since she was about 5 months old. The level of services and method of services vary from child to child and state to state. These services are provided under the federal law IDEA (Individuals with Disabilities Education ACT). I have come across parents that have never heard of […]

More Dumb Things People Say

| October 12, 2007

I was at my dentist’s office making a payment with Lyra a while back, and there was an older woman finishing up about the same time as us. She had been staring and making baby talk/saying Hi to Lyra for a few minutes. As we were walking out, me pushing Lyra in her stroller, the […]


| October 12, 2007

Lyra finally has her glasses. The first time we put them on, they were off in less than 30 seconds. Every time we tried to put them back on her, she would shake her head “no” and scream. Now, 2 weeks later, she’s kept them on for up to 20 minutes at a time and […]

Lyra’s 1st IFSP

| September 30, 2007

This is a new post, but old information. Originally I had posted a complete copy of Lyra’s original IFSP. However, because of privacy concerns, I removed that link. From this point on, rather than posting the complete file, I will just copy and paste the relevant information from the IFSPs. I will be updating a […]

Lyra’s Functional Vision Assessment

| September 3, 2007

Lyra’s Functional Vision Assessment -completed August 2006 when Lyra was 3 months old.