Category: children with albinism
admin | May 19, 2011
I am still in denial that she is actually going to be starting kindergarten this fall. She’s too LITTLE for kindergarten! I tell her I don’t want her to grow up, but then she tells me, “it’s okay mommy, I’ll still be your baby.” Make video montages at www.OneTrueMedia.com
admin | September 26, 2008
I post a lot of videos of Lyra. I do this not just to entertain, but also to support my overall purpose of starting this site. I’m not sure if they really HELP other parents of children with albinism. I hope that for NEW parents of a child with albinism, watching these videos gives them [...]
admin | August 31, 2008
Over the last couple of weeks I’ve been borrowing a friend’s Sony Digital SLR camera. It’s AMAZING how easy it is to take good pictures when you have a good camera. It’s been so much fun! I’ve been taking pictures like crazy. Lyra really knows how to ham it up for the camera.
admin | August 31, 2008
Lyra had an appointment with her pediatric ophthalmologist this month, a check-up that was originally scheduled for the end of September. Several weeks ago, we lost one of the lenses from Lyra’s glasses. After over a week of searching, I gave up. We knew we had to get her a new pair. I didn’t want [...]
admin | June 7, 2008
This was an idea I got from Lyra’s TVI. I took pictures of a variety of toys and objects that Lyra was familiar with or played with regularly. To make them more durable, I taped them to poster board a cut them out. Then I put them into the plastic sleeves of some old photo [...]
admin | May 19, 2008
These are some of the milestones Lyra met over this past year. They are not in any particular order. There have been so many! I don’t want to forget them. These are all I could remember. I’ll add more as I think of them. pulls string to move toy along open cabinets and drawers kick [...]
admin | May 11, 2008
In approximately 12.5 hours, my baby will be TWO!!! I am just not ready. It’s just awful for me really. All of my babies are growing up too quickly, but Lyra is my last baby. Even thinking about her not being a baby anymore makes me cry. Ahhhh… I’m just a big sap. Even though [...]
admin | April 11, 2008
Okay so I found some time to make this video. This is my attempt at zooming in on Lyra’s eyes so that you can see the degree/severity of her nystagmus. I apologize for my crappy camcorder skills. Between me not holding the camera steady and Lyra’s wiggling, it’s hard to know what shaking is actually [...]
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