Category: Hermansky-Pudlak Syndrome

Dare to be Rare

| September 12, 2012

When Lyra was born, her diagnosis of albinism was a shock to all of us. The weeks and months following were a time of confusion and worry about what it all meant.  Neither my husband nor I had ever seen someone with albinism in person.  One thing that we really wanted to be able to […]