admin | June 10, 2008
Most parents know how hard it can be to get your child to “perform” on command, but I decided to give it a shot. Here is Lyra showing off some of the words she’s learned over the last couple of months. She has been receiving regular speech therapy for the last month. Lyra even mentions [...]
Category: Developmental Milestones, Videos |
8 Comments »
Tags: albinism, language development
admin | April 11, 2008
Okay so I found some time to make this video. This is my attempt at zooming in on Lyra’s eyes so that you can see the degree/severity of her nystagmus. I apologize for my crappy camcorder skills. Between me not holding the camera steady and Lyra’s wiggling, it’s hard to know what shaking is actually [...]
Category: Videos, Vision Progress |
5 Comments »
Tags: albinism, children with albinism, nystagmus
admin | March 10, 2008
This is an older video, but it’s a good one to have on here for everyone to see. This is of one of Lyra’s first few sessions, either 3rd or 4th, with her Teacher of the Visually Impaired (TVI) and Occupational Therapist (OT). She is 5 and a half months old. Her TVI and OT [...]
Category: Early Intervention, Videos |
No Comments »
Tags: albinism, children with albinism, Early Intervention, low vision
admin | March 10, 2008
I have added quite a few more kids since I first wrote about this, so I am just reposting it and adding it to the video section. Make video montages at www.OneTrueMedia.com
Category: Support and Awareness, Videos |
4 Comments »
Tags: albinism awareness, children with albinism
admin | February 10, 2008
These are the kinds of things that Daddies teach their babies… You can never have too many videos of Lyra. : ) This is her showing off her new trick; and then later, just plain showing off. Here are the lyrics to the song she is attempting to sing. It is our special version of [...]
Category: Everything Else, Videos |
2 Comments »
Tags: albinism, children, language development
admin | January 31, 2008
Lyra wears her glasses now all the time, rarely taking them off except for at night. This is wonderful, however now they are nearly too small for her. They are beginning to leave marks on her nose where they are too tight, and they barely reach over her ears. This STINKS! I can’t believe we [...]
Category: Early Intervention, Videos, Vision Progress |
2 Comments »
Tags: albinism, fine motor, O&M, Orientation and Mobility, vision
admin | January 31, 2008
Although I haven’t been that vocal about it on this site, albinism awareness is something that is extremely important to me. One topic in particular that I have very strong opinions about is how albinism is portrayed on TV shows and in movies. I will educate everyone I know or ever meet in the hopes [...]
Category: Everything Else, Videos |
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admin | January 8, 2008
Lyra had her first candy sucker this week. It was quite an interesting and entertaining event. She first got a “taste” of the sucker earlier that day during a visit to the doctor. We had to put it away shortly after the taste, when the doctor came in the room. Later that evening Lyra was [...]
Category: Videos |
2 Comments »
Tags: albinism, albinism video, vision
admin | October 29, 2007
Lyra got her first haircut on Saturday. She did GREAT! I think it was harder on me. She’s had a mop on her head for quite some time, but I just loved it so much I wouldn’t take her for a haircut. It couldn’t wait any longer, so a friend of mine cut her hair [...]
Category: Videos |
1 Comment »
Tags: albinism, family, infant, Videos
admin | September 29, 2007
We’ve had some surprising new developments on the stairs this week. Notice how she looks down AND feels the edge with her foot. She’s a very quick learner. We’re so proud of her. Click Here →Like a Pro
Category: Developmental Milestones, Videos |
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