admin | April 3, 2009
Below is a link to a copy of the written report from Lyra’s latest Functional Vision Assessment. We really got a lot of useful information from this assessment. It was very thorough. I will write about this in more detail when I have a bit more time, but I wanted to go ahead and at [...]
admin | March 14, 2009
Lyra had a check-up with her pediatric ophthalmologist last month. They didn’t dialate her eyes at this visit. The health of her eyes is good, normal. Her nystagmus hasn’t changed…it remains minimal, in both the speed and the distance of the eye movements. The alignment of her eyes is still good…no crossing. I’m really trying [...]
admin | March 2, 2009
I’ve mentioned a lot of different types of assessments in my last few posts. Knowing what they are and how they differ can be really confusing. Also, I tend to use the words “evaluation” “assessment” and “examination” interchangeably, which probably adds to the confusion. Here are some links to information that define them and provide [...]
admin | August 31, 2008
Lyra had an appointment with her pediatric ophthalmologist this month, a check-up that was originally scheduled for the end of September. Several weeks ago, we lost one of the lenses from Lyra’s glasses. After over a week of searching, I gave up. We knew we had to get her a new pair. I didn’t want [...]
admin | April 11, 2008
Okay so I found some time to make this video. This is my attempt at zooming in on Lyra’s eyes so that you can see the degree/severity of her nystagmus. I apologize for my crappy camcorder skills. Between me not holding the camera steady and Lyra’s wiggling, it’s hard to know what shaking is actually [...]
admin | April 11, 2008
I have been meaning to post this for several weeks. Lyra visited her pediatric ophthalmologist for a check-up last month. They dialated her eyes this time to see if her refractive error had changed, and it did. Her prescription changed from +2.50 to +3.25 in her left eye and from +2.75 to +3.75 in her [...]
admin | March 28, 2008
Lyra has been exceeding all of my expectations with her vision. She has seen things or done things I thought would never happen. Like all kids with albinism, Lyra has multiple eye problems that contribute to her overall low vision. One of those is nystagmus which is an involuntary rhythmic shaking of the eyes. Lyra’s [...]
admin | January 31, 2008
Lyra wears her glasses now all the time, rarely taking them off except for at night. This is wonderful, however now they are nearly too small for her. They are beginning to leave marks on her nose where they are too tight, and they barely reach over her ears. This STINKS! I can’t believe we [...]
admin | December 16, 2007
Lyra had another appointment with her pediatric ophthalmologist a few weeks ago. Her vision continues to improve, however the best estimate we can get as far as accuity is still 20/200. She is too young to obtain visual acuities with standard measures. Dr. Grin is not seeing any recurrence of the strabismus and her nystagmus [...]
admin | October 12, 2007
Lyra finally has her glasses. The first time we put them on, they were off in less than 30 seconds. Every time we tried to put them back on her, she would shake her head “no” and scream. Now, 2 weeks later, she’s kept them on for up to 20 minutes at a time and [...]
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