Comments on: Vision Update- 22 months http://www.parentofachildwithalbinism.com/vision-progress/vision-update-2/ Thu, 02 Feb 2012 06:36:59 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Angela Hobby http://www.parentofachildwithalbinism.com/vision-progress/vision-update-2/#comment-3426 Angela Hobby Tue, 15 Jul 2008 00:35:13 +0000 http://www.parentofachildwithalbinism.com/?p=209#comment-3426 Hi! I love your website!! My daughter has albinism. She is 9 now. I sooooooo remember all the fears and worry that I went through when Lexie was that age!! we have patched, we'ver had surgery and then were scheduled for a second surgery and it was cancelled at the pre-op because she had gotten much better (power of prayer!) Anyway, I am always willing to answer questions or be a sounding board. It sounds like you are on top of things and a great advocate for Lyra. It is so important to do your own research and question everything. I made the same decision about glasses. When Lexie was little, we always used solobambini glasses. They are fabulous for little ones because they are molded plastic (soft and no hinges to worry about) they look precious and they are very comfortable. she wore them from 6 months to about 5 years old. since you change pretty often (or at least we did) you might check them out. www.solobambini.com . The owner is very helpful as well. Let me know if I can help you in any way...I always had people I corresponded with who were "ahead of me" in the albinism game. good luck!! Angela Hobby Texas Hi! I love your website!! My daughter has albinism. She is 9 now. I sooooooo remember all the fears and worry that I went through when Lexie was that age!! we have patched, we’ver had surgery and then were scheduled for a second surgery and it was cancelled at the pre-op because she had gotten much better (power of prayer!) Anyway, I am always willing to answer questions or be a sounding board. It sounds like you are on top of things and a great advocate for Lyra. It is so important to do your own research and question everything. I made the same decision about glasses. When Lexie was little, we always used solobambini glasses. They are fabulous for little ones because they are molded plastic (soft and no hinges to worry about) they look precious and they are very comfortable. she wore them from 6 months to about 5 years old. since you change pretty often (or at least we did) you might check them out. http://www.solobambini.com . The owner is very helpful as well. Let me know if I can help you in any way…I always had people I corresponded with who were “ahead of me” in the albinism game.

good luck!!
Angela Hobby
Texas

]]> By: Cassi http://www.parentofachildwithalbinism.com/vision-progress/vision-update-2/#comment-2920 Cassi Thu, 17 Apr 2008 23:24:18 +0000 http://www.parentofachildwithalbinism.com/?p=209#comment-2920 That is great! I think many people take those things for granted, but they are so exciting! I hope things continue to go so well. That is great! I think many people take those things for granted, but they are so exciting! I hope things continue to go so well.

]]> By: Cassandra http://www.parentofachildwithalbinism.com/vision-progress/vision-update-2/#comment-2903 Cassandra Sun, 13 Apr 2008 04:37:30 +0000 http://www.parentofachildwithalbinism.com/?p=209#comment-2903 Let me know how she does with the sunglasses, I am thinking of doing that next time for Madison. I am glad that it seems like her eyes are doing well. Let me know how she does with the sunglasses, I am thinking of doing that next time for Madison. I am glad that it seems like her eyes are doing well.

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